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saviour sibling
noun
[C]
a child who is born with genetic characteristics specifically designed to treat the illness of an existing brother or sister
The era of the so-called
saviour sibling
appeared to have arrived yesterday as doctors applauded the birth of Jamie Whitaker called into the world to allow his sick older brother Charlie to live
(
The Guardian
, 20
th
June 2003)
In mid-June 2003 a baby boy, Jamie, was born in Sheffield to Jayson and Michelle Whitaker. Their situation represents a landmark case in reproductive genetics, and the establishment of a new piece of terminology in the field, the term
saviour sibling
. Baby Jamie is a saviour for his four-year-old brother Charlie, who has a life-threatening blood disorder, because his embryo was selected specifically as a perfect tissue match. Charlies only hope of a cure is through stem cells from brother Jamies umbilical cord or a bone marrow transplant with his new brother as donor.
A hotly debated topic at the time of writing, the term
saviour sibling
is likely to have controversial overtones for some time. Some disagree with the idea on ethical grounds, arguing that the long-term social and emotional effects on the donor sibling are unknown. Others argue that the practice of controlled tissue matching is more justified if it benefits the health of the created child itself, as well as any sibling it would become a donor to.
Background
The term
saviour sibling
featured in an October 2002 article by M. Spriggs and J. Savulescu in the
Journal of Medical Ethics
. The phrase belongs to the terminology of what has in recent years been coined as
reprogenetics
, the use of genetic techniques to control the reproductive process. The related adjective
reprogenetic
also exists.
Reprogenetics
forms the science underlying a concept that emerged somewhat earlier so-called
designer babies
, a term first appearing around 1985. The phrase
designer baby
refers to a baby whose physical or mental characteristics (e.g. hair colour, musical ability) are chosen in advance by their parents. Though often used in similar contexts, the term
designer baby
has rather disapproving overtones compared to
saviour sibling
, where motivations for choice are strictly health-related.
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